You can attend Partners in Parkinson’s in Washington, DC on October 12.
1919 Connecticut Ave NW
Washington, DC 20009
Sunday, October 12, 2014
8 a.m. – 3:30 p.m.
Partners in Parkinson’s events help patients and their families optimize care at every stage of the disease. Whether you are newly diagnosed or have been living with Parkinson’s for years, hear from other patients and ask your own questions during a full day of panel discussions and breakout sessions on topics including:
How Parkinson’s impacts everyone differently, and how to tailor a care team that meets your specific needs
What to know, ask and expect from an appointment with a movement disorder specialist
Updates on the most promising current Parkinson’s disease research
How to live well with PD by strengthening connections, approaching Parkinson’s holistically and becoming engaged in the community
This resource fair will connect you with local healthcare providers, research teams who need clinical trial participants, and support and advocacy groups in Washington, DC.
Visit partnersinparkinsons.org to learn more or RSVP.
A treatment that could slow or stop Parkinson’s disease today took one step closer to pharmacy shelves. The Austrian biotech AFFiRiS AG announced positive results of its Phase I safety trial of a vaccine against alpha-synuclein.
Alpha-synuclein is the sticky protein that clumps in the cells of people with Parkinson’s, and AFFiRiS hopes to stop disease by inducing antibodies against alpha-synuclein accumulation. The Michael J. Fox Foundation funded this work with close to $2M, first with a grant for a pre-clinical study and then $1.5M in 2011 for the Phase I trial. It’s the first drug against alpha-synuclein to reach clinical testing.
“A treatment that could slow or stop Parkinson’s progression would be a game changer for the five million worldwide living with this disease and the many more who will become at risk as our population ages,” said MJFF CEO Todd Sherer, PhD. “This trial is one of the most promising efforts toward that goal.”
In two different doses the drug, called PD01A, was safe and tolerable. Half of those vaccinated showed alpha-synuclein antibodies, which is a promising but very early sign. Further trials will test PDO1A’s benefit to patients.
The next step is a boost study that will test the safety and effect of a boost vaccination (another dose). MJFF will support that trial, which will take place in Vienna, Austria and start recruiting in September.
The AFFiRiS trial is one study in the Foundation’s robust alpha-synuclein portfolio.
PMDC is now in the final stages of recruitment for a clinical trial:
Mindfulness-Based Stress Reduction for Individuals with Parkinson’s Disease and their Caregivers
This study will investigate potential benefits of a group-based stress reduction intervention on quality of life, physical health, and psychological functioning for individuals with Parkinson’s disease and their caregivers.
Participants will take part in weekly 1.5 hour group sessions for 8 weeks at the VCU PMDC. Therese Cash, MS, an advanced graduate student, is leading this project with Dr. Sarah Lageman providing guidance and oversight.
These weekly sessions will include:
· Instruction in and practice of mindfulness meditation
· Gentle yoga and other exercises
· Daily homework assignments including meditation practice for 30-45 minutes per day
The final series of groups will begin in mid-July and run through early September. This project is open to both individuals with Parkinson’s and their caregivers.
Registration will be limited to keep the group sizes small, and this will be the last opportunity to participate in this trial.
Please contact Therese Cash for more information or to sign up:
Phone: (434)-953-5370 (cell)
Saturday, October 11, 2014
NOTE: NEW LOCATION
Mount Vernon Baptist Church
11220 Nuckols Road
Glen Allen, VA 23059
Annual conference for patients and families impacted by Parkinson’s Disease, offering educational presentations, breakout sessions, exhibits & networking.
8:00 – 9:00 AM — Registration & Browse exhibits
Continental breakfast available
9:15 AM – 12:15 PM — General Sessions
– Integrative Medicine – Dr. Monique Giroux
– Deep Brain Stimulation and Quality of Life – Dr. Kathryn Holloway
– Nutrition – Dr. Marian Evatt
12:15 – 1:30 — Lunch
1:30 – 3:30 — Breakout Sessions
– Exercise – Dr. Jeff Hoder
– Video Game Research – Dr. Ben Herz
– PD 101
REGISTRATION OPEN JULY 1
Link to register: http://tinyurl.com/2014PDday
Early Bird Special $20 until July 31st.
$25 after August 1st
Mondays at 2pm at Project Yoga Richmond, 6517 Dickens Place, Richmond, VA 23230
Contact Sarah Humphries at (804)840-4881 or email: email@example.com
Download flyer PYR_continuesFlyer
June 30th will be final Monday this is offered.
However, Sarah offers a Genle EnJoYoga class most Saturdays at 10:30am at the same location and $10 recommended donation. This class is appropriate for people with PD. Contact her for details.
Do you have Parkinson’s Disease, ET, dystonia, MS or another neurological condition?
Have you been curious about trying yoga?
PROJECT YOGA RICHMOND (PYR) is offering a 4 week gentle yoga class for people with movement disorders. Try one class or come to them all!
Dates: Mondays: April 7, April 14, April 21, and April 28, 2014
Time: 2:00 – 3:00 pm
Location: Project Yoga Richmond (PYR) studio is located at 6517 Dickens Place, Richmond, VA 23230 www.projectyogarichmond.org
Audience: Anyone with a movement disorder and their spouse or care partner
Cost: All on-site classes are donation-based. On-site suggested donation is $10 per class or pay what you can. (Cash and check only, please.)
Instructor: PYR Ambassador, Sarah Humphries, ERYT – 200
Questions? contact Lynn Klanchar (804) 675-6952 at PADRECC, MCGuire VAMC
download flyer PYR_Flyer
You may not know that RVA now has a Young Onset Parkinson’s Support Group!
This group was established to help those who are trying to manage challenges younger people with PD face, such as employment concerns, parenting, caring for aging parents, maintaining relationships and managing financial and legal issues. This group is open to both people with Parkinson’s and carepartners.
WHEN: The group meets on the 4th Sunday of each month from 2:00 – 4:00 PM
2:00-3:00 the entire group will meet, and occasionally an outside speaker will be invited.
3:00 – 4:00 the group will split for separate discussions, individuals with PD in one room and carepartners in a separate room.
WHERE: VCU Parkinson’s & Movement Disorders Center
6605 W. Broad Street, Suite C, Richmond, VA
accessed via Forest Avenue
CONTACT: Andrea Perseghin – (804) 662-5300 or firstname.lastname@example.org
This information can also be found under the tab “Support Groups”
Dr. Leslie Cloud is seeking volunteers who have been diagnosed with Parkinson’s and are currently taking levodopa for a clinical research study to determine whether a new drug will improve digestion and response to levodopa. For more information please contact Dr. Cloud at email@example.com.
Click VCU_digestion_levodopaStudyto download flyer.
Karl Robb launched his first book on 12/12/12 called “A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease”. Karl and Angela Robb are asking for help to promote the book. You can:
• Buy the book on Amazon (paperback and Kindle), Smashwords (lots of eFormats), CreateSpace (paperback), Kobo, iTunes or Barnes & Noble (Nook).
• “Like” or “share” on Facebook, Smashwords, CreateSpace, Kobo, Barnes & Noble (Nook), Amazon (paperback and Kindle), iTunes, or Pinterest.
• Forward or Share a mention/link via email, Twitter, LinkedIn, Facebook, or by some other social media site to 12 or more friends who may have interest in learning about this book.
• Take a moment to read a portion of this book and comment, review, rate, or blog about A Soft Voice In A Noisy World at any, some, or all of the sites listed above.
• Email them comments, suggestions, thoughts, or requests for speaking engagements to asoftvoiceatrobbworks.com.
• Help them get to 12,000 followers by 12/24/12. Follow on Twitter at @asoftvoicepd.
Wholesale pricing for support groups, non-profits and organizations who want to sell copies of the book as a fundraiser or provide copies to their communities.
Please email or contact Karl & Angela Robb for more details.
A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease
firstname.lastname@example.org - email
703-277-9666 – phone