APDA Optimism Campaign

Image

We are extremely pleased to announce that the APDA Optimism Campaign has officially been launched. The website is now live at www.Optimism4Parkinsons.org All across the country, people are coming together to join in a common goal: to “ease the burden and find a cure” for Parkinson’s disease. Through the American Parkinson Disease Association’s national “Optimism” campaign, we’re spreading hope, confidence, and a positive vision for the future — as we increase awareness about Parkinson’s disease and raise money to find a cure.

The Victory Summit Symposium, Richmond, VA – Saturday, May 19, 2012

We are proud to partner with the Davis Phinney Foundation for Parkinson’s to host The Victory Summit in Richmond on Saturday, May 19, 2012 from 9:00 am – 3:15 pm at the Greater Richmond Convention Center.

This one-day event will feature presentations by nationally recognized researchers, clinicians, and physical therapists, giving you the latest information and practical tools that people with Parkinson’s can use to live well today.

The event is free of charge and includes lunch. Learn more about The Victory Summit at the Davis Phinney Foundation’s website. Bring your care partner, friends and family. This is a day not to be missed!

Registration is required.
You can register online at: http://VictorySummit.kintera.org/Richmond or by calling: 1-877-274-7673.

Questions? Email events@davisphinneyfoundation.org or call 1-866-358-0285.

See you in May!

VCU Parkinson’s and Movement Disorders Center
PO Box 980539
Richmond, Virginia 23298-0539
804-828-3747

PDPlan4Life Launches an Exercise Specific Webpage

What sets this site apart from others is our belief in the importance of community and the role it plays in our individual success. Each of us has something to teach and learn from others, so we are asking you to share your stories and comment on other people’s as well. We all have received help from someone along our life’s journey. This is our opportunity to “pay it forward.” If you know someone who has Parkinson’s and isn’t exercising, be a “Pal” and get them moving. Take them to a gym or take them for a walk around the block. Exercise begins with one small step.

Visit pdplan4exercise.com to:

• Share your personal experiences with exercise and exercise strategies.

• Read and comment on other people’s exercise stories.

• Find out what the experts have to say about Parkinson’s disease and exercise.

• Read about “what’s new” (everything from research to equipment) related to exercise and Parkinson’s.

• Follow links to:

o Web sites about specific exercise programs (boxing, dance, etc.) and Parkinson’s.

o Information about ongoing clinical trials focused on exercise and Parkinson’s disease.

o Exercise publications you can download and print.

We are confident you will find the inspiration and knowledge you need to make exercise work for you.

EXERCISE RETREAT AND CONFERENCE May 6-12, 2012

Experience a HISTORIC RESORT RANCH in WICKENBURG ,AZ with 3 MEALS A DAY & EDUCATION, EXERCISE & ENRICHMENT
* WHAT DOES RESEARCH SAY ABOUT HOW I SHOULD EXERCISE TO REDUCE MY SYMPTOMS?
* HOW DOES EXERCISE CREATE POSITIVE BRAIN CHANGE?
* WHAT EXERCISES WILL BENEFIT ME SPECIFICALLY?
* WHY IS EXERCISE SO CRITICAL FOR MY CONTINUED WELL BEING?
* HOW OFTEN SHOULD I EXERCISE AND AT WHAT INTENSITY?
* HOW CAN I STAY PWR’D AND IN CONTROL?
* HOW CAN I BE PROACTIVE AND REDUCE MY FREEZING & FALLING?
* HOW CAN I ADVOCATE FOR MYSELF? HOW DO I ACHIEVE BALANCE IN MY LIFE?
Join Dr. Becky Farley with your Partner and Family! Meet with PWR! exercise specialists, physicians, and health/fitness professionals that understand exercise and PD!
Learn about & experience research-based exercise approaches ALL INCLUSIVE EXERCISE RETREAT AND CONFERENCE
For Info: sally@nfnw.org or call 520-270-9990 or go to www.nfnw.org Sponsored by NeuroFit Networks – Limited Spaces so Sign up Early

Parkinson’s Disease Foundation Recognizes National Family Caregivers Month

When the symptoms of Parkinson’s get really troublesome, we first think of the person with the disease.

But think of the love, sacrifice, and hard work of the families we celebrate during this National Caregivers Month — the families of Parkinsonians, who are also facing these troubling times.

Without the constant compassion and strength of these caregivers, 1.5 million people would battle Parkinson’s alone.

If you’re a caregiver, let me thank you for your commitment and love. They’re amazing gifts — and indispensable.

I must say this on behalf of every partner in APDA’s struggle against the uncertainty of this disease: Caregivers are the backbone of the Parkinson’s community.

No one else on the care team is better equipped to ensure consistency of care. No one else is more familiar with their loved one’s medicine, treatment and exercise regimens.

But, as incredible as they are, caregivers cannot do it alone. Caring for someone with Parkinson’s can be more than a full-time job, and caregivers need help to get the resources they need.

That’s why the APDA Information and Referral Centers you support are so vital. So are APDA support groups. Caregivers need to know they’re not all alone. They need to meet other caregivers and share advice, comfort and stories.

Celebrating Caregivers!
Joel Miele,Sr.,P.E.
Chairman
American Parkinson Disease Association

“What’s Shaking in the Kitchen” Cookbook for Sale

We are pleased to announce the publication of our “What’s Shaking in the Kitchen” Cookbook. This 200 recipe cookbook is now available for purchase. All proceeds go to the Richmond Metro Chapter – American Parkinson’s Disease Association.
If you would like to purchase a copy, please send your check or money order (made out to APDA Richmond Metro Chapter) in the amount of $13.00 (to cover shipping costs) to:
Denise Barker
APDA Richmond Metro Chapter
P.O. Box 70283
Richmond, VA 23255-0283
Please be sure to put a note stating how many cookbooks you want to purchase and the address to mail the cookbook(s).
Cookbooks will be available for sale at the October 22nd Parkinson’s Disease Community Education Day event at Sheraton Richmond Park South. Cash sales and cost without shipping is $10.

PARTICIPANTS NEEDED FOR A NEW PARKINSON’S EXERCISE STUDY Impact of Forced Exercise on Patients With Parkinson’s Disease: A Pilot Study

Purpose of the Study: The purpose of this research study is to determine if people with Parkinson’s disease can benefit from a type of stationary bicycle exercise. It is being developed by the physician-investigator, Abu Qutubuddin, M.D.

Study Requirements: Study participants will be required to exercise for 30 minutes twice weekly for 8 weeks at the Richmond VA on a stationary motorized bicycle. The purpose of the study is to determine if this type of exercises improves the symptoms of Parkinson’s disease.
Study participants will need their Primary Care physician approve their participation.

Eligibility: Those interested in participating in this study must have a confirmed diagnosis of Parkinson’s disease over three years, be able to walk, have a good response to anti-Parkinson’s disease medications, and be willing to attend sessions regularly. Those having problems with memory, blood pressure, and heart conditions cannot participate.

Referral Information: Please contact the following for more information about the study:
Abu Qutubuddin, MD PADRECC
804-675-5931 Room 2C-115
Email – Abu.qutubuddin@va.gov