December 7th, 2009
2:20 am
Have you or a loved one been recently diagnosed with Parkinson’s disease (PD)? Are you adjusting to life several years into PD? Do you need help finding a physician or a support group or managing your medications?
Call (800) 457-6676
Monday through Friday
9 AM ET to 6 PM ET
or Ask the Expert Online
Our toll-free helpline/email service – staffed by a team of information specialists – can:
Answer your questions about Parkinson’s disease, symptoms, treatments, complementary and alternative therapies and the latest scientific studies reported by the media
Help you to find local support groups in your area, physicians in your neighborhood that specialize in Parkinson’s disease and similar conditions, and financial, legal and other resources to help you live well with PD.
Each specialist provides a sympathetic voice and ear, with an understanding of the challenges you may be going through. If we can’t answer a question, we’ll find someone who can. While this does not replace the relationship you have with your physician, we can help you prepare for your visits or provide advice when you cannot reach your team of healthcare professionals.
Begin finding answers today by:
Calling our toll-free helpline – (800) 457-6676 – from 9 AM – 6 PM ET to speak directly with an information specialist.
Submitting your question using PDF’s “Ask the Expert” online feature. Once you submit your query, you will receive an answer within 8 to 10 working days from a member of our team.
Reviewing our “Frequently Asked Questions”- an archive of answers to the questions most often submitted to our information specialists.
Checking every week for the new question of the week.
August 18th, 2009
11:46 pm
You have a chance to join with fellow members of the Parkinson’s community to make a difference on a crucial issue – a national registry for Parkinson’s disease. The frustrating truth is that, while we have some estimates, we don’t know how many people are living with Parkinson’s disease. That’s why, together with the Parkinson’s Action Network, we’re writing to urge you to ask your Members of Congress to cosponsor H.R. 1362 and S. 1273, the National MS and Parkinson’s Disease Registries Act.
The National MS and Parkinson’s Disease Registries Act will establish separate, permanent and coordinated MS and Parkinson’s disease national registries at the Agency for Toxic Substance and Disease Registry at the Centers for Disease Control and Prevention. The registries will determine incidence and prevalence of the diseases and lay a foundation for better evaluation and understanding of disease factors, such as geographic clusters of diagnoses, variances in gender ratio, changes in health care practices and changes in disease burden.
It is our hope that the MS and Parkinson’s disease registries will facilitate research that may lead to the discovery of breakthrough treatments and one day a cure for Parkinson’s, MS and other neurological diseases. Please join us in this effort by contacting your Members of Congress.
You can help gain support for this important legislation by contacting your Members of Congress and asking them to cosponsor the National MS and Parkinson’s Disease Registries Act (H.R. 1362/S.1273).
Help Our Community Gain Support for H.R. 1362
Ask your Senators to Cosponsor S. 1273
The Washington State APDA presents the following podcasts for those who are interested in learning more about Parkinson disease. Topics include an introduction to PD, Parkinson 101, medications, nutrition, exercise and more.
Feel free to access any of the media below either by listening to it online, downloading it to your computer, or loading it on a portable device.
On several of our podcasts, we have also included a brief media survey that will pop up automatically at the end of the podcast. These surveys will help us to understand how informative our podcasts are as well as what future podcasts we should produce.
http://www.soundhealthmedia.com/client/APDA/
Announcing the new young onset website.
Visit www.youngparkinsons.org
Now Online!
Wanted you to be among the first to know!
Please…Help Us Spread the News
Tell the young people in your area!
In this program, HCTV talks with local people who deal with Parkinson’s every day. Find out how they cope and what options are available locally in “Battles with Parkinson’s Disease.”
VIEW THE PROGRAM ON COMCAST, CHANNEL 17
February 19th, 2009
2:21 am
Order products with the pd tulip on them. (Or create your own products.) All proceeds go to the Milly Fund of Parkinson’s Action Network. (see below)
www.zazzle.com/pdtulip
February 11th, 2009
6:36 pm
PARKINSON’S DISEASE AND ACTIVITIES OF DAILY LIVING
John Argue and Jeanne Csuy, PT show you how to get into and out of a car, how to get out of a deep couch, how to get up after a fall, how to start walking after a freeze, and how to help another person do all these movements and 50 more!
Available ONLY on DVD. $27 each
Run Time: 55 minutes Color
Visit the following website to order this DVD by mail along with other John Argue materials –
http://www.parkinsonsexercise.com/argue_book-video.html or order by phone: (510) 985-2645
Submit Your Story
Could you be one of our new “Faces of Experience?” Have you been able to: effectively manage your symptoms, develop a particularly strong support system, participate in a clinical trial, become an advocate…? How did you do it? If you were diagnosed with PD at a young age, you and your family may be able to help others adjust to certain aspects of living with the disease by sharing your unique experience with them.
Stories received may be featured on www.youngparkinsons.org or in other APDA publications. Please submit all stories with the subject line “Story Submission” and email to: www.apda@youngparkinsons.org